"Cancer Deception" Don't go making trouble,
doctor told breast victim who complained
by Paul Eastham, Daily Mail 31/3/1995
THOUSANDS of breast cancer victims were 'fooled' into having
needless radiation which left them crippled and in agony, four
angry women told MPs yesterday They said doctors assured patients
whose tumours had been removed that radiotherapy was needed only
as a precautionary measure - and did not warn that their bones
could crumble and they could lose the use of limbs.
Surgeons were accused of bullying and attempting to intimidate
sufferers to prevent them complaining. One patient, the wife of
an aristocrat, was warned: 'Don't come around here icoking for
trouble.' The four women, all radiation victims and leading members
of the
lobbying body Rage, which stands for Radiotherapy Action Group
Exposure, revealed their anguish at their treatment to the Commons
Health Select Committee, which is investigating NHS breast cancer
care.
They demanded a radical overhaul of the nation's approach to
the disease and State compensation for those allegedly 'misled'
over the effects of radiation.
Rage represents 1,000 breast cancer radiation victims and is
in touch with 2,000 more.
It is surveying members to assess their loss of earnings before
drawing up a formula in the next few weeks which will be the basis
of a mass claim.
Health experts say some breast cancer victims suffer worse than
others, partly because inexpert radiographers can deliver a double
dose of radiation.
The comrnittee was told that the Health Service had recently
overhauled the use of radiotherapy. Patients were more carefully-selected,
radiation was aimed more precisely, and the number of adverse
reactions was falling.
Baron Ironside's wife, Audrey, founder president of Rage claimed
something had 'gone dreadfully wrong' for years with the way the
treatment was planned and delivered.
She said of her own injuries: 'The radiographers weren't frank
with me. All of us in Rage were told that there would be no profound
side-effects. We would suffer perhaps temporary nausea and exhaustion
but no permanent injury.
Lady Ironside went on: 'Perhaps I was trusting and foolish. Now
I suffer severe pain and paralysis. If I had been properly informed
about the dangers, I would have walked away and said, 'No, thank
you", and taken my chances.'
She said she later discovered that, far from it being a virtually
failsafe process, nearly one in five breast cancer patients irradiated
at one London hospital suffered severe injuries which wfll steadily
get worse.
She had found it impossible to get redress. 'The doctors had
a very bullying attitude,' she told the MPs. My husband and I
were told not to go looking for trouble, When you are a patient,
you are in a very low position, upset and shocked. You are not
in a position to do much arguing.'
Doctors 'bitterly resented' the fact that victims had risen up
in their own defence, said Lady Ironside. When she had complained,
they had reminded her that half of ill breast cancer victims normally
died after five years. 'When they cannot think of anything else,
they say, "You're lucky to be alive," 'she added. Rage
committee member Hazel Thornton, 60, a company secretary from
Colchester, Essex, has given herself a 3 1/2 year crash course
in breast cancer medicine to tackle the doctors.
She called for the Government's breast screening service to wound
up because, she said, it concentrating on older women who were
less at risk of death younger ones with often aggressive cancers.
Rage wants the worst performers among 216 hospital-trust cancer
units across the nation 'weeded out' and replaced with 200 specialist
centres.
Women Condemned To Life of Pain and Handicap
LADY Ironside says her left arm was paralysed and her bones made
brittle after her radiation treatment went wrong.
Despite careful questioning of doctors about the consequences
of the 'purely precautionary' radiotherapy sessions, she has suffered
repeated fractures to her injured arm, collar bone and four ribs.
Lady Ironside, 63, had her breast cancer diagnosed in 1982. She
had the lump removed at one hospital in London and radiotherapy
at another.
Two years later she had an operation for compression of the nerves,
deep pain and the onset of paralysis in the left arm and hand.
In 1991, she launched a High Court action seeking compensation
from the NHS. She fought on for 31/2 years. In the end, she had
to pull out after two weeks in court when she learned that to
carry on would cost more than £200,000. She explained that
as 'a middle-class woman she did not qualify for legal aid and
the weight of the medical establishment was against her.
'Unless you have £200,000 and nothing else to do with it
but waste it on a court case, you have to abandon it,' she said.
Former art historian Lorna Patch, 72, was forced to stop working
after her right arm was paralysed following radiotherapy.
She said: 'I was never warned about the risks. I am in constant
pain. The condition is quite irreversible and progressive.
'They said people like me had physical abnormality that led to
this unusual result from a treatment that had otherwise been successful
over the years. We were bullied into not going back to hospital
and we were never offered any help.'
JAN Millinglon claims that hospitals distributed leaflets at
the time of her treatment declaring that the side-effects were
short-lived.
The 55-year-old headmistress and founder member of Rage, from
Northiam, East Sussex, was diagnosed as having breast cancer in
1982. She had a lump removed and then radiotherapy. H right arm
is now paralysed Several cancer charities and the Royal College
of Nursing Breast Care Society echo similar concerns to Rage. |